I
pulled over to the curb of the drop-off zone in the school parking
lot this morning, turned to Amy in the back seat and said, "Okay, see you at
2:35."
She had a
slight smile on her face, almost mischievous, as if to hint that she was
playing a game by not getting out of the car. "C'mon, Amy,
time for school." Still just the smile, her eyebrows perked
up. "Amy..." She simply looked out the car window as
if she didn't hear me. Her expression said she was about to say
something funny, her lips about deliver some punch line, but they just
sort of quivered a little, and then I realized it.
This was
the onset of another seizure.
I said her
name a few more times and asked if she could hear me.
"Say
something!" I pleaded.
She
couldn't. Then the rhythmic spasms began. She tightened up
and began convulsing. I got out of the driver's seat, and ran
around to open her door, undo her seatbelt, and lay her down on her left
side in the back seat.
Meanwhile,
cars are pulling in behind us and ahead, dozens of kids and moms are
moving past, three feet from us, and no one notices. This is a
good thing, insofar as it could be an incident of embarrassing notoriety for
Amy, something a few kids would witness and then later recount with
exaggeration and drama over a hot lunch or out at the monkey bars.
But it was also interesting that with this proximity no one asked if she
was okay. I hope no one noticed. If I had called for help I
know someone would have been there for us, but I do wonder if anyone
saw, knew, and just kept moving. Which, I guess, is actually okay
too.
I don't
know to what degree my daughter is conscious during these
episodes. I'm hoping it's a complete blackout, or at least an
overwhelming fuzziness that keeps her from being too aware of her own
condition. Her spasms continued for about five to eight minutes
during which she appeared to be having a vivid dream - her jaw
clenching, the rapid eye movement behind almost-closed lids. Her
throat gurgled with convulsions. This is always the most difficult
aspect, wondering if she's going to vomit and aspirate it.
I
monitored her breathing. It was good and steady. I let her
go through it, reassuring her quietly that she was doing fine, that it
would be over soon. After what seemed like a very long time, but
what was probably only three or four more minutes, her spasms subsided
and she was just very groggy. She still could not speak or respond
affirmatively in any way, but she was able to sit up now, and in fact
preferred that. The crowd behind us was gone now. The bell
had rung, the kids were in their classrooms, and the parents had
dispersed.
I
retrieved my cell phone from the front passenger seat and dialed Viv at
her office.
At moments
like these I can almost smell the event being burned into my
memory. The visuals are movie-like and framed with self-awareness.
I
explained to Viv that we were in the school parking lot, that Amy was
having a seizure, and that it seemed to be going okay, or at least it
was following the course that books and pamphlets and doctors had told
us it probably would. I told her Amy was sitting up and that we'd
be going home pretty soon. Viv said she'd contact Amy's
neurologist at Children's Hospital and get back to me with any
recommendations.
I strapped
Amy back into the seat. As I got behind the wheel, my imagination
flashed to a scenario of me being the driver of the Kennedy limousine in
the Dallas motorcade. I accelerated faster than usual out of the
parking lot, my mirror askew to keep an eagle eye on Amy who was drowsy
but no longer convulsing. Just ahead was the intersection of
decision; I turn left and it's three blocks to the emergency room, a
right turn gets me back home.
I turned
right.
I could
see her nodding off as we drove home, the warm sunlight, then shadow,
then sun again moving across her face as we rode through the curving
residential streets. I wondered what she was feeling, what she was
thinking, if she was thinking. I called her name a few
times on the ride home to open her eyes and bring her back upright and
not have her hanging down across the shoulder belt.
In four
minutes we were home. I picked her up and carried her to the
porch. I set her down on her feet and held her up with my left arm
around her body as I fished for my keys with my right. As I
opened the door, she vomited onto the welcome mat. I tried to
hurry us in so that I could lay her down inside instead of on the cold
cement of the porch. We didn't quite make it to the linoleum of
the kitchen before she vomited again. Now I picked her up and
carried her to the kitchen, swung her legs out and laid her on her
side. I held her head in my arms as she threw up a couple more
times.
After a
few minutes, things subsided. As I write this now, I remember
thinking, knowing, there was going to be a journal entry here, one way
or another, sometime or another, and wondered at what point I'd be able
to write the words "things subsided."
So things
subsided there in the kitchen. I helped her to sit up. She
stayed there, cross-legged on the floor, as I grabbed a roll of paper towels
and started to clean up the linoleum. I offered a box of tissues
to Amy and, to my relief, she was able to nod and grab one to wipe her
nose and chin clean.
Viv called
and said she was coming home. That felt good.
I guided
Amy over to the open sofa bed in the living room, laid her back to
remove her wet clothes, and then put her under the covers. I
turned on the television. Then came a moment of truth -- I asked
her what channel she wanted.
"62"
she said.
Ahh.
Her brain was on the way back. She could speak again.
It had
been a harrowing 45 minutes.
*****
Now it's
1:30pm. Amy's had a nap, Viv is home and making soup, and I'm
walking around trying to make as many normal sounds as I can.
Something in me figures if I make all the right noises and all the right
moves our lives can get back on track without having to
summon all the king's doctors and all the king's men.
But
y'know, now that I think about it, we're not off the track. This
is just where our train goes.
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