There's
not much to evaporate around here lately. I'm making headway into
raking up the tons of leaves in the backyard, but that's about it, as far
as domestic accomplishment is concerned. Soon I'll be mowing the grass,
and then spraying water seal onto the last of the pickets on the fence
around what used to be the pool area. Then I'll rake some
more. Amy will get home from school and we'll revel in Friday, the
homework-free afternoon, the first flop onto the weekend
cushion.
While
being a parent may appear to be a glamorous thrill on the outside, it's
the interior workings that give it the satisfaction I've become
so fond of. I've mentioned here in the past, perhaps too much, the bonus that raising a disabled child brings to the work of parenting,
and I think I'm about to mention it again.
All her
life, Amy has been on the shy side, as you might expect from a kid like
her, but for almost a year now she's been involved in the after-school
drama club and this has done a lot toward bringing her out of her
timidity. On Wednesday evening, her troupe of thespians gave a
performance of Rudyard Kipling's The Jungle Book -- a version which had very little to do with Kipling, almost nothing to do with a
book, and involved a jungle only because someone had an artificial
ficus that they brought from home to decorate the stage. The kids were
in animal costumes, however, and they did retain the names Mr. Kipling
used.
Amy
was a monkey. An impulsive girl by nature, she inhabited the
character rather purely, keeping the fourth wall intact not through any
Stanislavskian feat but simply because she was immersed in fun monkeyness with her pals.
The
audience, dozens strong, was made up mostly of parents of the actors,
and, like me, they were brimming with pride over their progeny.
There is, however, a mechanism within me which self-activates, you might even
say detonates, whenever I see my kid do something like this, and it
gives me the feeling of being different. I'll run
a little movie in my head, a short reel. It's got the hospital
footage showing the tubes that went into her at two days old,
quick cuts through the countless hours of physical therapy, slow-motion
scenes of milestones passed, months or years late, smiles from a girl in
a swing, brain scans, blood tests, and the glances, how many hundreds of
glances from grown-ups and kids sizing her up, wondering what's the
matter with her. If you were to look at
me as the movie plays, it might seem as if I'm not paying attention. But I am.
There's a
strange pride that comes with being a parent of a disabled kid, and we
generally keep that feeling hidden and talk about it only with our own kind.
Like war veterans. That's because it's boring,
probably, and we wouldn't want to seem like someone who walks up to
strangers, lifts his shirt, and says, "Hey, guess how I got this
scar."
So I keep
a journal. I just sit here with my shirt up and let you poke
around. Nothing unusual about that, right?
Okay,
maybe I
was wrong. Maybe there's a lot to evaporate around here.
*****
I'm
going to try to squeeze in a mini photo safari sometime this
weekend. Something near downtown LA maybe. I'm feeling a
need for non-verbal expression.
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